Epilepsy com ejourney

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black n95 mask walmartI was diagnosed with epilepsy at five years old. I had around twenty-one seizures a week, experienced multiple EEGs, trialed multiple medications, and was prescribed twenty pills a day. Ten in the morning, ten at night. At age ten, I ended up having a two-and-a-half-hour grand-mal seizure that resulted in me being air lifted to a children’s hospital where I flatlined and was.

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DJ HAPA has been a long-time advocate and supporter of the Epilepsy Foundation and shared his journey filled with challenges and perseverance in this latest issue. Additionally, features include one of our epilepsy awareness ambassadors who has struggled with seizures since she was 8 years old. In her personal essay, she talks about the nine.

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Each Journey is Unique What Epilepsy Means for Farrah By Farrah Back to Stories Farrah of Georgia, whose young daughter lives with two types of epilepsy, shares what epilepsy means for her family. The other day I was asked, "So what is epilepsy exactly? Is it just seizures ?" I mumbled something about it being more than that.

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Read his eJourney here: Bob is sharing his 32-year journey with epilepsy and how it encourages him to live his best life, despite challenges. Liked by Anna Drotman.

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Stephanie: Reagan went from his first seizure on May 27, 2012, to having brain surgery July 10, 2012 — a mere six weeks. We were watching our son struggle physically and decline cognitively using the anti-seizure medications, and we were thinking, “This is not a long-term option for him.”. It was scary to think about brain surgery, but.

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In early 2020 one of our twins, Travis, who we call T-Money or Money, was diagnosed with Dravet Syndrome, a rare childhood form of epilepsy. At the age of 7 months old Travis had his first seizure which lasted 18 minutes. Travis had a second seizure 30 days later; it was another tonic-clonic that lasted 70 minutes and required multiple doses of.

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Farrah of Georgia, whose young daughter lives with two types of epilepsy, shares what epilepsy means for her family. The other day I was asked, “So what is epilepsy exactly? Is it just seizures?” I mumbled something about it being more than that. The truth is epilepsy is different for each person, so I can’t tell you a good definition that fits everyone.

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Today is 01/26 and we're recognizing the 1 in 26 people diagnosed with epilepsy at some point in their lifetime. We invite you to join us May 13-15.

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craigslist akron freeThe Epilepsy Foundation is unveiling a new community blog called eJourney, which features stories from around the country of people living with epilepsy. Share your story with epilepsy and inspire.

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LANDOVER, Md., October 26, 2020 — In recognition of National Epilepsy Awareness Month (NEAM), the Epilepsy Foundation is launching a sweepstakes with Brazilian-American fashion designer and beauty entrepreneur Camila Coelho, where one winner will receive a 26-minute virtual hangout and $260 of merchandise from her luxury beauty brand, Elaluz.

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Living with epilepsy has been very difficult in my employment life. I have had two previous employers dismiss me from my job. They proclaimed it was for different reasons, but I knew it was because of events that took place due to my conditions that I have with epilepsy. The current job I have now dismissed me from basic training because they said that my epilepsy.

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Epilepsy Foundation of America promises a stigma-busting convention that educates, celebrates, and empowers people with # epilepsy to live their best lives. Hundreds of adult attendees will participate in interactive lifestyle and tech sessions, explore an exhibit hall of products and experiences, and make new or renewed connections with each.

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Through a series of stories, #RemoveTheFilter encourages people affected by epilepsy to leverage the power of their eJourney to decrease fear, encourage conversations and inspire action. Those.

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Back to Stories. When Domenick was four years old, he started having these “episodes” where he would be running around playing and laughing and then would stop dead in his tracks, get very pale, and become withdrawn. He would vomit and then usually go into a deep sleep. On our first trip to the hospital, I was told it was vasovagal syncope.

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As with many great ideas, the eJourney initiative came from a conversation with leaders in our community. Board members Camila Coelho and Cynthia Hudson suggested a new approach to telling the stories behind the fight against epilepsy. Please join Camila, Cynthia and many, many more in this brave act of standing up against epilepsy.

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recently shared her story with the Foundation via a blog, and the idea behind eJourney was born. The Epilepsy Foundation will be using our Foundation Quarterly to highlight blogs from the community. In this issue, read anto Me.”.

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The epilepsy and Dravet syndrome communities are asked to share their stories and raise funds during a national month of activities.

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